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Hopper, Louise; O'Sullivan, Oonagh; Joyce , Rachael; Jelley, Hannah; Woods, Bob; Orrell, Martin; Irving, Kate; Verhey, Frans |
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Measuring quality of life in dementia is challenging for many reasons: for example, poor recall, time perception, insight and communication. However, recent studies indicate that meaningful measurements can be made using subjective and proxy ratings on condition-specific measures. In this study, as part of the Access to Timely Formal Care (Actifcare) JPND-funded research project, the quality of life and the (un)met needs of people with moderate dementia and their informal caregivers are measured at baseline, 6- and 12-months using a variety of self- and proxy-rated instruments (QoL-AD, DEMQOL-U, PAI, EQ5D5L, ICECAP-O, CANE). This paper presents baseline data from forty-three Irish people with dementia and their carer dyads, living at home, and not availing of formal dementia care services. No significant differences in self-rated quality of life scores for any demographic variables or for severity of dementia (MMSE, CDR) were found, however, self-rated and proxy-rated scores were si...
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